Finding support for your macular disease journey
Often, when newly diagnosed or living with a macular disease, people can feel overwhelmed and anxious. MDFA’s macular disease support programs could be the answer.
Of course, you can always seek help from your eye health professional or a counsellor. But, for some, speaking with people who are on the same macular disease journey may be more comforting. If that’s you, a support group or Peer to Peer phone session could help you feel less alone and better understood.
Macular Disease Foundation Australia offers both Peer to Peer phone support and community support groups.
To enrol in either of the programs listed below, please contact MDFA. We also welcome expressions of interest for people wanting to set up a support group.
National Helpline1800 111 709
Peer to Peer phone support
Sometimes you just need a friendly voice on the other end of the phone. Macular Disease Foundation Australia’s Peer to Peer telephone support program provides just that.
We know that vision loss from macular disease can be quite isolating for people without a support network.
The Peer to Peer program will give you the opportunity to speak to and share experiences with one of our volunteers. They either have been living with vision loss themselves, or have a close friend or family member with macular disease.
Our Peer to Peer program is not a counselling service. Our volunteers will not give out any disease information and any questions relating to macular disease will be transferred back to our education team. But they can share their life experiences and are great conversationalists!
To register for Peer to Peer phone support, please contact MDFA’s National Helpline on 1800 111 709 or send us an email.
Community support groups
Macular Disease Foundation Australia is piloting a series of macular disease support programs that operate as a face-to-face community groups.
There are many benefits to joining a support group.
- Members have similar issues so feel less alone and better understood.
- Members share information and keep each other up to date on current issues, activities and community services.
- Sharing information about current medical research, treatment, and support services from invited speakers.
- A fun social outing where people can develop friendships.
- Support of peers and acquired knowledge empowers people to solve their own problems.
- Seeing others living well with the same condition is inspiring.
- Safe, welcoming, inclusive environment creates a sense of belonging and improves self-esteem and feelings of wellbeing.
- These groups are generally inexpensive to run and attend, making them accessible to all.
Find a support group
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Start a support group
If you are interested in forming a macular disease support group in your area, MDFA can assist. We have practical advice for starting a group – including protocols and policies. We can supply welcome kits for new attendees plus assistance with promotion. MDFA can also help link your group to local eye health professionals and guest speakers.